Since their skin is as delicate as butterfly's wings, the children with this condition are called "Butterfly Children".
Dystrophic Epidermolysis Bullosa Research Association of America (DebRA) is a charity that raises awareness of EB and helps find funds for people with EB. Although no one has been cured from the disease, DEBRA is optimistic that someday they may be able to help all Butterfly Children survive.
The video uploaded in Facebook has gotten over 14.4 million views, 247,000 shares, 150,000 likes in a span of four days. The fanpage uploading the video has stated, in one of the comments, that you may donate to a charity that supports this cause.
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