Juliana has a rare genetic condition called Treacher Collins Syndrome, which generally affects 1 in 10,000 people. She is missing around 40 percent of the bones in her face, so her face appears elongated and sagging.
She is currently attending an elementary school in Clay County, Florida. She still receives nourishment through a tube but they are hopeful that she may eat on her own someday.
She has had a total of 45 surgeries since birth.
Via USA Today